our diagnosis Archives - Just Playing House https://justplayinghouse.com/tag/our-diagnosis Lifestyle Blog: Motherhood, Child Loss, Grief, and Thriving After Loss Fri, 18 Oct 2019 04:20:05 +0000 en-US hourly 1 https://wordpress.org/?v=6.4.8 https://justplayinghouse.com/wp-content/uploads/2016/10/200x200-50x50.jpg our diagnosis Archives - Just Playing House https://justplayinghouse.com/tag/our-diagnosis 32 32 Our Diagnosis – Into The Unknown – Porphyria 101 https://justplayinghouse.com/motherhood/porphyria-diagnosis-101 https://justplayinghouse.com/motherhood/porphyria-diagnosis-101#comments Wed, 18 Jan 2017 01:54:16 +0000 http://justplayinghouse.com/?p=3544 Porphyria has come to mean a lot of things. I hold a piece of paper that tells me it is the reason my 7-year old son died. DNA testing tells me everyone in my family has it. When I speak with doctors, there is either confusion or questions. Most tell me they can’t believe our story because, “people don’t die ... Read More

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